Posted in Uncategorized

Permanently Disabled–Temporarily

I have wandered aimlessly through most of my life wondering what the hell was wrong with me. I’ve been asked “what is your damage?!” I’ve been called a flake. I’ve been told I’m too young for all these problems, too smart to be struggling, that I just needed to “get my shit together.” “I, or they, or so-and-so can do it and they have x,y,z in their lives, why can’t you?”

Look in the mirror today and tell yourself “I’m proud of you.” You should be.

For over 30 years now, this is how I’ve muddled along. Trying one thing after another. Having more dreams than my body can hold or that my mind could manage. Having a child young and the maturity to know I had no business raising her. Worrying my whole life since about disappointing her with my lack of success. Getting married. Having another child. Learning new terms related to atypical, special needs, autism spectrum disorder, attention deficit/hyperactivity disorder. Dyslexia. Delays.

Realizing we’ve got this, looking at that little boy and going oh-my-goodness-I-can’t-get-enough-let’s-have-another! Getting pregnant again. Learning what it means to lose a child. Getting pregnant again. Living in gut wrenching, blood freezing fucking terror that she won’t make it for nine months. Giving birth and bringing her home, then not wanting to do anything but love on and hold forever the only girl, of three I have carried, that I get to keep.

Learning more words. Defiance. Opposition. DMDD. Executive functioning deficits. And then looking at them, and looking at the man I love and saying, hey, um, I recognize some things here. Seeking more diagnoses, now for him. And then for myself.

And then, through relentless pursuit after so many years, we now both know why we couldn’t get our shit together. (Did you know that many adults seek and receive an ADHD diagnosis after their children are diagnosed? There’s a pretty great read about it here: https://www.healthline.com/health-news/parents-realizing-they-have-adhd-once-kids-are-diagnosed#9.)

Knowing your limits winds up making life a little bit more limitless. Through that relentless pursuit we obtained answers. And just as there are IEP’s in grade school, there are accommodations in higher learning institutions that are meant to help us succeed. It can be immensely frustrating to learn of a high mental ability in conjunction with a list of disabilities. These accommodations only allow brilliant minds (that appear to be) in “broken” bodies, to shine.

Now, he’s in his second year of college. And, although my physical and mental limitations mean that I am technically permanently disabled, I am starting two businesses. Because this time, we have the world on our side, because knowledge really is power.

 

Posted in Mental Health

Hot Mess Happiness

I often struggle with what to say, because there is always so much. So much on my mind, so much on my plate. So many struggles from so many different executive functioning deficits. Where to start, and how to plan, and scheduling difficulties, etc.

My closest friends and family work in much the same way. There are a few exceptions that really seem to have their poop in a group, with their clean houses and good memory of commitments. Even they forget a few things here and there. But they are also such an inspiration.

I have found January to be that long “Monday of the year” we keep seeing memes about. There are financial struggles that can dampen even the brightest of triumphs. There are days when it feels like even my therapist hates me. She doesn’t. (The fact that I can write those two sentences next to one another is evidence that she’s a good therapist.)

And so I find myself struggling with finances and scheduling, with health problems and a lackluster interest in things.

I take a deep breath and continue my mantra that I will not keep attracting these things with “could it be any worse,” “I needed more problems in my life,” etc. I will keep my eyes, heart, ears and soul open for joy and abundance.

I will relish in and cherish the friendships and family I have. I will be grateful for their forgiveness of my awful moods and continue to know I can do better, and will continue to do better. I will know that I and those around me deserve love, joy and stability and because we know it to be true we will find it.

I will relish in the knowledge that I am a part of my tribe. This tribe that knows what it’s like to be in the middle of some hot mess happiness.